| Comment | Given what you say it sounds like a really high stress situation. I think the best way forward is to involve the charities and maybe the sister more.
I suspect her sister will have seen this happen to one of her parents (if they share the same parents) and there is also the chance she is affected. Either way, she may know what’s coming and may be more acutely aware of what will be needed soon.
From what you’ve said, I suspect her son is having a very hard time dealing with the diagnosis and potentially his own outlook. It sounds like his coping mechanism is to try to ignore it, which probably means he hasn’t been tested himself and constantly lives with the uncertainty of being a carrier. The outbursts of anger are probably a mere symptom of his own helplessness / anxiety. I think that’s at least a likely scenario.
The best way forward will be the charities. They’ll have experience in these matters and will hopefully be able to help her and her son.
Also, I suspect she receives regular care from NHS neurologists specialising in the disease, who may be able to organise more help if her problems are being flagged up to them - maybe by her sister. It’d have to be a relative, I’m sure they wouldn’t talk to you. |
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